Chronic pain is defined as pain that persists for more than six months. It is often mysterious and goes undiagnosed, but can stem from injury, illness, surgical complications, or can be an inherited condition. Because it is a condition that is invisible, pain often goes without treatment or validation. The chronic pain experience is not just about the physical sensations, but also has serious emotional and social implications.
Finding good information and meaningful dialog about chronic pain can be challenging. Many of the resources out there are very clinical, too general, or are written from outside the pain experience. There are few voices by folks with chronic pain about their struggles and how they keep living as full a life as possible. This zine attempts to begin to fill the empty space with a diversity of voices telling their stories. We hope that by publishing these essays people will feel a greater sense of permission to speak out. Further, we hope to create more community for those with chronic pain and their allies.
This zine is a collection of 7 essays about chronic pain and caregiving. Issue one contains essays on identity, invisibility, capitalism, bravery and hopefulness as they relate to the experience of chronic pain. Additional essays on caregiving and care in activist communities.
Beautiful two color covers. 48 pages, 1/2 letter sized. Published in Aug. 2008. Available through etsy.